The
Working Mother Research Institute surveyed nearly 2,500 women, including more
than 1,200 who have cared for a loved one with Alzheimer's, to get a clear
picture of how the responsibility of caregiving affects their emotional,
financial and work lives, as well as their families.
Women and Alzheimer'sDisease: The Caregiver's Crisis was sponsored by GE and designed with input from the
Alzheimer's Association. It explores not only the burden of caring for a loved
one with the disease, but also ways that employers, doctors and families can
help caregivers lighten their loads ever so slightly.
They also talked to women who are not caregivers, to learn
more about how well they understand the disease and to get a sense of their
feelings about it.
Among
the conclusions:
· Employers can’t afford to overlook the issue of
Alzheimer’s. As society ages and
workers retire later, there will be ever more Alzheimer’s caregivers on the
job, says Ellen Galinsky, president and co-founder of the Families and Work
Institute. “Our data shows 49 percent of workers expect to be caregivers within
the next five years,” she says.
· Doctors need
to be more proactive. Despite women’s
higher risk for the disease, doctors aren’t regularly discussing Alzheimer’s or
aging at checkups. More than three quarters of respondents say their physician
hasn’t broached either topic.
· A substantial
number of women are stuck in a caregiving role. Although 30 percent want to provide care themselves,
even more—39 percent—appear to be trapped (no other family member can do it, it
feels “expected,” or they can’t afford or don’t like the available facility
care.)
· Whether they
are tending to someone by choice or by default, caregivers are struggling in
every area of life. They are more likely than their
predecessors to feel overwhelmed, to feel they don’t have a choice in taking on
the role and to be experiencing a financial drain. As well, at a time when
extra income is sorely needed, caregiving often places a women’s career on hold—she’s
less likely to take a promotion and much more likely to make schedule adjustments
(scaled-back hours, a leave of absence) that reduce her chances for immediate
advancement.
· Within the
caregiving group, minorities are struggling the most. They spend more on caregiving overall and are twice
as likely as white caregivers to spend more than $10,000 per year. They also
have fewer hours of help at home, despite being nearly twice as likely to be
caring for a patient in the late/severe stage of the disease.
· Caregiver health is a major issue, given that
these women often take better care of the loved one with Alzheimer’s than themselves.
The Alzheimer’s Association estimates that caregiver health problems cost
the U.S. $8.7 billion each year.
A quick search of this blog will show the enormous amount of space devoted to caregiving issues. This is a societal problem that needs
support from everyone, including those not affected by caregiving
directly.